Alport Syndrome Foundation

The ASF MISSION is to improve the lives of those affected by Alport Syndrome through education, empowerment, advocacy, and research. The ASF VISION is to conquer Alport Syndrome. ABOUT ALPORT SYNDROME Alport Syndrome is a rare hereditary kidney disease that causes a decline in kidney function, hearing loss and vision problems. The disease leads to kidney failure for 50% of most boys by age 25. Girls are affected too, with some impacted similarly to boys but most seeing later disease progression. An Alport Syndrome diagnosis devastates families because it often affects multiple family members across generations. There is no cure...

Patient education and advocacy,clinical practice guidelines,professional education,support community,research funding,kidney disease,alport syndrome awareness,kidney health,5k for healthy kidneys,and fundraising

Alport syndrome foundation operates in the Wellness and fitness services industry.

Alport syndrome foundation's revenue is 11m - 100m

Alport syndrome foundation has 11 - 50 employees.