Phelan-McDermid Syndrome Foundation

The Phelan-McDermid Syndrome Foundation (PMSF) is the leading organization worldwide that advocates for those affected by the rare genetic condition known as Phelan-McDermid Syndrome (22q13 deletion syndrome). The mission of the Foundation and its Board of Directors is to offer family support, accelerate research as well as raise awareness of PMS. We are committed to educating families by providing them with tools to improve the quality of life for those diagnosed with PMS, from children to adults. We work closely with researchers who study PMS and its related conditions autism, epilepsy, seizures to advance the body of knowledge in the...

Non-profit;famly support;research;rare disease;special needs;autism;raising awareness;advocacy

Phelan-mcdermid syndrome foundation operates in the Non-profit organization management industry.

Phelan-mcdermid syndrome foundation's revenue is 11m - 100m

Phelan-mcdermid syndrome foundation has 11 - 50 employees.