Spinal Muscular Atrophy UK

Spinal Muscular Atrophy UK is a national charity that provides accurate information and support to anyone affected by SMA through our support line, website and outreach services. As advocates for the SMA Community, we work in partnership with other organisations to improve access to the best care, services and treatments available within the UK to allow people living with SMA to lead the lives they want to lead. Pharmaceutical companies are now investing heavily in the clinical development of drug treatments; these are important stepping-stones that we will continue to monitor and support. Since 1986, we have raised and donated over 5 million in support of research. Our strong connections and collaborations with other UK and international SMA charities and groups, clinicians, researchers and the pharmaceutical industry, ensure best use of any funds we allocate to research-related initiatives. Where we can make a difference, we will