TOFS

Tracheo-Oesophageal Fistula Support (TOFS) charity was set up in 1982 by parents of children born with OA/TOF and associated conditions. As a charity we are dedicated to: Offering free support to anyone who was born with OA/TOF and the people who care for them. Raising awareness of the condition amongst health care professionals. Funding, endorsing and encouraging research into the condition and its effects What is OA/TOF OA/TOF is a rare congenital condition of the oesophagus (food pipe) and/or trachea (airway) that affects one in every 3,500 babies. Babies born with a Oesophageal Atresia (OA) and / or a Tracheo-Oesophageal Fistula (TOF) condition need to have intensive neo-natal care prior to corrective surgery, normally within days of birth. Whilst many children born with OA/TOF will experience only a few problems, others may have difficulties with swallowing and digesting food, Gastro-Oesophageal Reflux (where the acidic stomach contents pass back into the lower oesoph...